Anxiety...
I feel like I am being crushed from the inside out, somehow. I know it makes no sense, but that is how it feels. My breath is catching in my throat and chest, every single one... My body feels heavy. Seconds drag into what feels like minutes, and my heart is desperately racing...
I've been in the hospital recently, so I have home health care services that have been coming to my home, which has been a huge stress factor to me. Physical therapy and a nurse checking on me, giving me things to do, until I am fit to actively leave my house to seek services. One golden thing that I had been desperately clinging to was that while I had been in the hospital, the doctor who had previously done surgery on my back, and is the head of nuerosurgery approached me while I was there and we had a conversation.
"We'll get this figured out," he told me with a kind smile. It seemed genuine.
"What do you mean... like surgery or treatment?" I asked for clarification. In the past he had been against surgery until I had absolutely needed it.
"Probably with medication or some other therapy right now. I'm consulting with a medicine specialist right now, I'll see you again tomorrow." He explained to me, but the next day I was discharged. When I asked if the doctor had made any appointments for me, or notes, or anything, the nurse was very annoyed and began to tell me that while I had been in the hospital that they gave me "the same pain medications that you receive while you're at home". She thought I was some junkie or something looking for a fix I suppose... But I wanted to find out more about the meeting that never happened.
Eventually it got to the point where she was offering me "what medicine do you want, so you will leave?" Not only was I personally offended, I was shocked at her lack of professional conduct... So I wrote it off that I wouldn't get any help and left... after politely explaining for the 20th time that I had spoken to the doctor and had just wanted to know about the mysterious course of treatment he had mentioned the night before, but like whatever.
A couple days later I got a call from his office, scheduling an appointment though... very soon. Within a couple weeks, when it often can take months to be seen there! So I was surprised, but happy. They didn't see what it was about though, but when they called to cancel it yesterday they saw it was only to check in because I was in the hospital under his care.......................... a completely pointless appointment. Completely pointless meetings with people who just agitate my back pain and make me feel worse emotionally.
I feel like I want to just find a really nice blade and slice my throat and bleed out somewhere, but I know I don't have a sharp enough blade that could cut deeply enough before I would wimp out.... I saw a psychiatrist, and she was an idiot, too. I knew more about medicine than she did. What is becoming of our medical personnel?
She broke down and began arguing with me and calling me names, like.... someone in middle school would do... it was... sad. I have only seen a couple other grown women do that, my step mother, and ghetto women. I would never have guessed I would ever see a PSYCHIATRIST do that... Because she doesn't know prescribing laws... I mean, just because she is ignorant, doesn't mean that it's my fault lol.
Finally to top everything off, last night on the news Russia is stirring things up in Syria... and NOW the redneck Mexican family I live with cares... NOW the news cares... oh but then a few minutes ago there was another shooting in a college, and that is more important news than impending world war. I mean, yes students dying is terrible... but.... world news affects so many more people.
A Gamer Girl who is dealing with... Being disabled, struggling to live, dealing with depression, a survivor of abuse physical and sexual... and being poor and not able to afford video games and comics and awesome nerd loot.
Thursday, October 1, 2015
Saturday, September 19, 2015
Finding A Voice
I remember when I was very small that on the local news, it would actually show... well news.
Last night I endured about an hour of frivolous stories, and a few stories that were somewhat emotional, before hearing about things that are affecting thousands right now, and soon may affect millions. I am sorry that six hikers died because of a flash flood, and a toddler was killed, but I would much rather here more pressing matters about thousands of refugees fleeing Syria who are being starved and abused because Germany followed through with their threat to carry the quota of refugees allowed to their borders, and no one will take these poor people. What is more scary is that it seems no one is concerned that Russia has military presence in Syria, a country we are fighting a war in currently, and not long ago Russia was doing reconnaissance missions along the West Coast... But hearing about how cats and dogs need homes, and the best places to dine for the Emmy's is much more important to hear about.
Making matters worse is that I live with a house of very ignorant and racist people. It is ironic how much they are willing to bash on Obama but happily take benefits that he brought in with many of his policies that he introduced. Not to step on toes, but they are typical "LA Republicans" except they are Mexican instead of hailing from mixed European descent. I'm impressed how quickly LA Republicanism is catching fire.
L.A. republicans like to pretend that they are smart, but they are usually quite uneducated. They will ask questions in answer to questions, instead of supplying a good answer. They will argue using the same "fact" reworded again and again. They also see the Bible as law, and usually as literal history, EXCEPT when it interferes with what they want or like... like shellfish, polyester blended clothing, eating pork...
So I saw an actually good, but very racist, caricature of Obama as a black-monkey person in the living room, and I was of course like, wow... yeah.. This family hates black people. They pretty much equate all black men to being criminals. I bet I could bring Neil DeGrasse Tyson into this house and they'd be ready to grab the wood baseball bat that is in the living room.
On the news was the whole debacle over Planned Parenthood and the supposed selling of fetal tissue to people or companies and the majority red-neck House decided to either defund PP or "stop government," according to the news. So it left Obama 14 days to decide. I immediately exclaimed that it was horrible...
Thinking about 3 million reported patients that they have a year, and the king of the hill of further south redneck's immediately replied, "I know, murdering all those babies..."
So again without thinking I replied, "No, those poor women. They barely do abortions compared to the STD and prenatal care they offer! I've taken so many girlfriends there for help. I don't condone abortions, so I'd never help with that, but I was surprised when I learned they do way more." And I should know. I worked in a pharmacy for years. Do you have any idea how many prescriptions for things like condoms or birth control come from clinics associated with PP?
I could tell I steamed him up, so I decided to look it up and found, "Only 3% of their services are abortions... if it's a problem stop the abortions, but continue prenatal care...." I again pleaded my case for all those places to stay open.
Later in the night I actually looked into the issue further, and the fetal tissue was possibly being given to a company illegally, without their knowledge, so they could treat people with cancer and other serious health issues... But the kicker to me was when I looked up the exact laws about abortion and federal funding........there is NONE.
Abortions cannot be funded by the government.
So closing every planned parenthood that exists would do nothing about the abortion problem, because girls aren't getting government aid to get them there! Women are getting government aid to have healthy babies at Planned Parenthood, or men and women are preventing STDs. All of the ignorant idiots in government and around the USA haven't even bothered to Google basic laws of how abortion works, and therefore are probably going to cause more baby deaths than ever because 3 million patients will lose clinic care for natal and sexual care. Good job America!
I recently did a stint in the hospital, too... which... god.. I can't even get into that now..
I was very jostled around, and eventually it all left me with a discharge and somehow over medicated and yet my pain not managed. I've been trying to speak up the whole time I was there, but I cannot help but wonder, is there anyone to hear me?
Last night I endured about an hour of frivolous stories, and a few stories that were somewhat emotional, before hearing about things that are affecting thousands right now, and soon may affect millions. I am sorry that six hikers died because of a flash flood, and a toddler was killed, but I would much rather here more pressing matters about thousands of refugees fleeing Syria who are being starved and abused because Germany followed through with their threat to carry the quota of refugees allowed to their borders, and no one will take these poor people. What is more scary is that it seems no one is concerned that Russia has military presence in Syria, a country we are fighting a war in currently, and not long ago Russia was doing reconnaissance missions along the West Coast... But hearing about how cats and dogs need homes, and the best places to dine for the Emmy's is much more important to hear about.
Making matters worse is that I live with a house of very ignorant and racist people. It is ironic how much they are willing to bash on Obama but happily take benefits that he brought in with many of his policies that he introduced. Not to step on toes, but they are typical "LA Republicans" except they are Mexican instead of hailing from mixed European descent. I'm impressed how quickly LA Republicanism is catching fire.
L.A. republicans like to pretend that they are smart, but they are usually quite uneducated. They will ask questions in answer to questions, instead of supplying a good answer. They will argue using the same "fact" reworded again and again. They also see the Bible as law, and usually as literal history, EXCEPT when it interferes with what they want or like... like shellfish, polyester blended clothing, eating pork...
So I saw an actually good, but very racist, caricature of Obama as a black-monkey person in the living room, and I was of course like, wow... yeah.. This family hates black people. They pretty much equate all black men to being criminals. I bet I could bring Neil DeGrasse Tyson into this house and they'd be ready to grab the wood baseball bat that is in the living room.
On the news was the whole debacle over Planned Parenthood and the supposed selling of fetal tissue to people or companies and the majority red-neck House decided to either defund PP or "stop government," according to the news. So it left Obama 14 days to decide. I immediately exclaimed that it was horrible...
Thinking about 3 million reported patients that they have a year, and the king of the hill of further south redneck's immediately replied, "I know, murdering all those babies..."
So again without thinking I replied, "No, those poor women. They barely do abortions compared to the STD and prenatal care they offer! I've taken so many girlfriends there for help. I don't condone abortions, so I'd never help with that, but I was surprised when I learned they do way more." And I should know. I worked in a pharmacy for years. Do you have any idea how many prescriptions for things like condoms or birth control come from clinics associated with PP?
I could tell I steamed him up, so I decided to look it up and found, "Only 3% of their services are abortions... if it's a problem stop the abortions, but continue prenatal care...." I again pleaded my case for all those places to stay open.
Later in the night I actually looked into the issue further, and the fetal tissue was possibly being given to a company illegally, without their knowledge, so they could treat people with cancer and other serious health issues... But the kicker to me was when I looked up the exact laws about abortion and federal funding........there is NONE.
Abortions cannot be funded by the government.
So closing every planned parenthood that exists would do nothing about the abortion problem, because girls aren't getting government aid to get them there! Women are getting government aid to have healthy babies at Planned Parenthood, or men and women are preventing STDs. All of the ignorant idiots in government and around the USA haven't even bothered to Google basic laws of how abortion works, and therefore are probably going to cause more baby deaths than ever because 3 million patients will lose clinic care for natal and sexual care. Good job America!
I recently did a stint in the hospital, too... which... god.. I can't even get into that now..
I was very jostled around, and eventually it all left me with a discharge and somehow over medicated and yet my pain not managed. I've been trying to speak up the whole time I was there, but I cannot help but wonder, is there anyone to hear me?
Friday, August 14, 2015
Being Lonely
So lately, I’ve been struggling with severe isolation. I’m well aware that many claim to
have this, too, because so many of my friends say that they have this precise problem,
even worse than me. They do not have time to socialize outside of work, or perhaps that even work at home, and these people only go out shopping for food and other errands and
such. Hearing the complaints and trying to be sympathetic is just digging the dagger
deeper and deeper into my heart.
I only leave my room to use the restroom or to get food. That is, my bedroom; ROOM,
not house… I rent a room from a family whom, at the moment, is having some severe
emotional issues when it comes to my disability, they are extremely uncomfortable with
my presence, so I have to keep myself isolated to my bedroom. I literally have had only
two real social interactions in the last few weeks, and besides that, I have only dealt with
medical visits where the doctors were extremely wary, because of my fragile physical
state. I am dreading the impending chance that I may need a second spinal surgery.
My back is doing so bad, and my seizure episodes have returned, that my physical
therapy has been decreased again, which means that I have lost the once weekly
excursions from my house. I also have not had use of my laptop for over a month… So I
do not even have online social interaction, except from my phone, which is extremely
spotty due to the poor WiFi supported from the router that this house has. Thanks
Verizon.
Even prisoners in federal jail are allowed at least an hour’s recreation every day with
other prisoners every day, but I don’t even have this luxury… (Maybe I should get
arrested?) I received annoyed text messages from a friend complaining that they were
alone in their house. At least they are able-bodied enough to leave their house. They
could afford to walk, take a bus somewhere! I cannot physically walk out of my house
and go anywhere. Yesterday even if I wanted to I couldn’t walk to the kitchen for food,
because I was in so much agony and pain.
To be so hungry and unable to even make yourself even a microwave meal, only eating
plain raw oats… day after day, and knowing that you will not even speak to another
human being for another solid six days… Often my voice will go unused unless I talk to
myself or sing.
What makes matter’s worse off, is that I’ve tried to reach out socially. I tried to join a
“Brony” group, fans of “My Little Pony: Friendship is Magic”. Which, as the title
suggests, should emphasis friendship and tolerance and acceptance, but so far my
dealings have been terrible with the local people. Back in downtown Los Angeles the
people were all kind and awesome, but here many come off as quite stuck up and jaded
and I’m not sure why.
One of the famous people in the Brony community had commented that as the
community had grown he’d noticed that more and more people had joined who were
jerks and… other unaccepting people. Maybe I should have listened to him, but he is
someone who did not seem like he really wanted to seek to change his situation and find
happiness. He is someone who would complain to me about being alone, lonely, and sad
all the time, but he was able-bodied and could leave his house, seek to change his
situation, unlike me, but he chose not to.
But, this is one side of the coin.
There is a huge thing that has been irking me for years now. It has become popular for
people to edge into “unpopular” things… Nerdy things, geeky things, and etc. Lots of
people jumped onto the bandwagon of anime and manga for example. Now even
emoticons and terribly mislabeled emoji everywhere I turn and I want to punch someone
in the stomach every time I hear someone who is not Japanese say, “emoji”, unless it is,
an emoji… orz there we go, THAT is an emoji. That is how I feel when an American emoticon is used and someone calls it an emoji, orz . Someone told me that Apple is
actually to blame for this, though, because they had an app that misused the term emoji.
Apple ruins everything… I mean like literally everything.
Someone in one of these groups that irked me badly asked me, yes asked me, about
fighting games, and then once I named off games, then they claimed that the games were
anime and not games… Which a simple Google search and Wikipedia page will show there are games and no anime of the majority of the games listed… The person actually told me to look it up... so I politely explained that, uh no, they are games you play, not watch.
(They went so far as to make very inventive names for Smash Brothers and Mortal
Kombat, and challenged me to “list them”, like list every airdasher genre game, and they saw that they had lost when I easily began naming off game after game of the genre easily.)
They were so stubborn about wanting to appear to know things about nerdy subjects that
are currently popular that they insisted to be correct, despite their wanting information in the first place. Then because they realized that they were grossly ignorant they began to
accuse me of being an abhorrently fake clinger on, like they obviously were, called me a “weeaboo”, because I actually was knowledgeable about Japanese culture, along with anime, manga, but video games, the gaming scene, and comics. I am annoyed by these fake people who are just scene fakes, but I do not see it as a contest or challenge.
This person accused me of trying to brag by mentioning that I had hurt myself in physical therapy, a place where I am trying to recover enough to walk again… Yes, I am a big tough person who hurt myself so badly, I had to use my wheelchair to move around in the
area, when usually I’m able to walk around more when I’m there… It was like this f3person wished to tear what ever shreds of dignity that I, as a poor, disabled, lonely, girl who can’t even take care of herself, has left.
I am a person who tries desperately to actually hide my intelligence and experiences because of the severe abuses I have suffered from people like my father and this person. People who wield their ignorance and jealously around as weapons against others instead of trying to be accepting. (An example, if you argue with a ghetto person they will get in your face and yell repeatedly the same thing over and over, as if they are proving a point, it makes no sense.) I’m not the best at expressing myself, so occasionally when I let a blatant fact slip, like say, I have beaten someone who was once the second best player at Meltyblood in the nation before, I do not mean it as a bragging point… I mean it as, wow is it not cool and sound fun? We should hang out some time and perhaps play some games!
The person who targeted me most recently chose a name that had a title of “Tollerance” in it, yes, misspelled, ironically because they were very intolerant, and it showed their ignorance at the gross misspelling. “Theres a thing called a humble brag, where you brag while trying to make yourself look like its an accident Comments like ‘I over worked myself on the excersize machine and now im banned’ for a good example” was what this person said to me that crawled under my skin.
It was a humble brag to try to let out my deep sadness that my single weekly sessions of going outside of my bedroom was being taken away because I hurt my back? I didn’t over-exercise, my back was hurt because I slipped and fell and I was not cautious enough that physical therapy. I can’t walk very far, and it was far, far, from a brag, it was some of the worst disaster that has occurred to me recently, because it was the first physio I have received for five weeks, because my therapist was on vacation… now I have to wait three weeks! Another three weeks of isolation in my room because my body is in so much pain and is so weak… how is that bragging?
I replied by apologizing over and over to this person, but they did not care at all. It seems like in my life I always seem to be able to take the anger from everyone, whether I am the just cause of it, or not. Often these people have been angry from other reasons, like this person later explained, but I am the person who doesn’t stand up for themselves and allows the terrible treatment to be carried out. Whether it was getting beaten by my ex, trapped in a tiny room, hit by my father, or terribly controlled by the people I live with in cruel and unusual ways, I don’t know how to find the strength to stop it… Because in each case, where would I live?
Saturday, June 20, 2015
Lerner Rowe and FML
6.19
Today was a BIG day for me; a lawyer's office
was going to call me and help me re-apply for SSDI or SSI. AGAIN. This office
was different. It was motivated to really help me! Unfortunately about thirty
minutes ago they called, and about fifteen minutes ago I ended the call intears, because it was completely pointless.
A friend asked me what the name 'Neptune Fallen'
was from, or if it meant something, once. It is not from anything in
particular, but it does mean something to me. Neptune
is also known as Pluto, and was seen as the god of the underworld, or even
heaven in ancient times. Also sometimes Neptune
was viewed as the god of the waters, seas, and rivers. Neptune
fallen is literally a depiction of a fallen god, of the heavens and or the
seas. Especially today.
-Cops arrive and interrupt me writing.-
Then forty five minutes after they called the
cops leave... Lovely. Where was I? Um, yes, the person at the lawyer's office
who is helping me is a fucking idiot... I was beginning to feel better, but now
I want to throw something hard against concrete and watch it break...
"Your claim is still active, he wants you
to know that," the cop told me. No, not the claim from before, but the
claim that I haven't even begun... The claim that is upsetting me. The claim
that I haven't even gotten a chance to explain in my blog why it is upsetting
me, because cops literally burst into my home and interrupted me! Ugh! I
suppose he is a kind guy, and means very well, but his intelligence is
something that is really lacking from the little I've dealt with him. Reminding
me of the woman from Fry's and the cop Jams dealt with.
So I hear a firm knock at the door, and I assume
that it is probably someone of the family I rent from, asking something from
me, or notifying me of something... and I open the door to, a buncha cops. The
cherry on top is that Maria Sr. the crazy Spanish speaking-only grandma is
here, along with the army uncle who is nearly stalkerish in how much he follows
people online, including me. Hope he likes this post, he isn't bad looking tbh,
and is actually pretty cool and fun to hang out with.
I nearly run outside to the front yard, out of
earshot of everyone inside, so we can talk there. Even if I had a giant room
that could fit dozens inside, with how thin our walls are, I would choose the
same spot. Immediately, but delicately, I am asked how am I doing, and I
totally bomb it.
"I'm not doing too well," I blurted
out, sitting on the grass, picking at some shoots. "I uh, well my back is
hurting, I tweaked it trying to rush out here... But I am feeling better
emotionally than I was. I had called a crisis line."
"Alright," the cop replied, I assume
happy I admitted that I'd called a suicide help line. I wasn't going to try to
pretend that I was totally happy for the last few hours. "Did you tell
anyone in the last few hours that you would hurt yourself?"
"Uhhh... yeah on the crisis line, I had
pills in my hand, and I was wanting to take them," I answered frankly,
glancing nervously up a couple times. "After several minutes I was feeling
better and didn't feel like that anymore."
The cop looked almost as if a fish had crawled
out of a fish bowl and run away or something. I guess he wasn't used to people
just admitting things so plainly. So he asked me more questions like about me
hurting myself in the past.
"I used to, a long time ago. You can see
scars on my arms, but it's been well over a year since I've actually done it. I might have
urges, but I've not actually hurt myself in a long time." I explained.
"Yeah... I can see some of the scars,"
he glanced at my arms and gestured with a finger at the pale slices intermixed
with the slightly darker skin. "When was the last time you did that?"
I scoffed slightly nearly a laugh, "Pff....
I don't even remember it's been so long," I shook my head. "Before I
moved here, and I've been here a year."
"Okay," he nodded. I'd been very
frank, he seemed to believe me so far, or at least seem to think I was being
mostly truthful. My scars obviously are not from days ago, but do look like
they could be weeks old I will admit. "Have you ever been to a mental
health facility?"
"Like a clinic... or?"
"Like admitted. Have you been to
Hillmont?" he asks this. I shudder and the cops notice my reaction. I
laugh loudly.
"Yeah, I've been to Hillmont," I
answer with a grin, "One of the last times I was there I needed to get my
gallbladder out, they were giving me liquid antacid, as soon as I was released
I had to rush to Santa Paula for emergency surgery. Hellmont just let it fester
inside me. No offense to them, but that wasn't the first time they've injured
my physical health. They make me worse than I feel, hehehe." I chuckle and
shake my head.
"What about ....?" They mention a
place I'd never been.
"Nope, I've never been there... and I was
feeling depressed earlier, and I have been feeling down off and on recently. My
psychiatrist lowered my dose of one of my meds, I wouldn't be against being
admitted to a facility if it weren't Hillmont." I replied.
Again the cops stared at me as if I'd grown a
third eyeball or something. I was just being so mellow.
"Heh I bet I could also get a shower,
too!" I added with a grin.
"You can't get one here?" the younger
male who's been silent asks.
"Uh.... nope," I answer, my voice
still friendly, with a smile.
"Why not?" the main officer asks me,
his eyes wide.
"I waste water apparently. I'm not supposed
to take showers, cause I fall, and I can't take baths cause of our drains, and
then I also waste water, but everyone else can bathe...." I explain with a
sardonic smile. The officer finally is beginning to get a read on me, that
perhaps though I seem mellow that there is more behind it.
"You need to find another place to
live." he tells me. "But before that, can I see your cell
phone?"
"Sure, no problem... and I've been looking
for one."
I go and get my cell phone, while one of the
cops watch me, and they are shocked by my messy room. The biggest contention of
me living where I do. Before the cops left one of them jokingly laughed to me,
"Yeah, and you should probably clean your room," with a kind smile.
My landlords claim fire department people and police will fine or issue other
things if they see it, but so far cops, paramedics, police chiefs, and more
have seen my room in worse states than it currently is messy and are totally
chill with it and only have parentaly suggested I should clean
it up, with a smile and often a chuckle.
Anyways
The main cop has my cell phone and asks me,
"Did you tell anyone that you might kill yourself today?"
"When I was online with the crisis hotline,
yeah, I was talking about it. I did send a text insinuating it to my best
friend, but other than that no..." I answered and then kind of fell onto
my side.
The young man cop immediately reached his hands
out towards me in worry, "Are you okay? Do you need a chair?"
"Oh no, I'm fine, well not fine... I hurt,
but lying on my left side like this is best. Thank you, though." I reply
with a smile. The main cop is looking through my phone and the other cops who
are closer to my age are looking at me weird, as if how could I just hand my
phone over to a cop? I didn't fight, try to erase things, try to explain
things?! Nope, just gave him my phone. He can lol over funny texts between me
and Jams.
Finally he asks me, "What did you say to...
the crisis team... and to Dustin from the lawyer's?" I realize that he's
gone through my texts and call history, and likely might have checked my skype
and facebook and internet, too, in just that three minutes. I don't use them
much.
"Dustin I admitted that the SSI application
was pointless, everything in my life was pointless, I wanted to just give it
up, terminate anything that had begun, there was no reason to keep it going. If
I begin to receive assistance I will receive a gross amount less for rent and
food than I currently get... and I began to cry uncontrollably and I was trying
to get off the phone and just end the process of applying again... with the
Crisis, I admitted I had a buncha pills I wanted to take, and got talked out of
it, by realizing there are programs to help people who have nothing...."
Finally the cop said he was going to make a few calls on it, and he walks away.
The younger girl cop asks me something I could
tell she was dying to ask, "Do you always dye your hair like that?"
I chuckle, "Um, kind of... It was purple
since October, but then I was trying to dye the purple out, and I got this
pink." We all laugh at this explanation and then the younger man
mentions the bright pink is reminiscent of the 80's, and I recall
that I like it a lot because it is similar to Cadance from My Little Pony:
Friendship is Magic.
"Can I ask how you hurt your back?"
the girl cop asks, her voice polite, but nervous.
"Yeah," I reply. "Back in
December 2010 I was in a car accident and got 3 herniations, but then in 2012,
this doctor Ashokan herniated on disc from 5mm to a centimeter. That made it so
I couldn't walk at all for a long time."
"Oh wow..." she said, her eyes
sympathetic.
"Yeah, I deal," I tried to smile
encouragingly. This is my life, I can't live for myself. I have to pretend to
be okay for other people. Finally the cop with my phone returns with my phone
and tells me...
"Yeah Dustin from the lawyer's office wants
you to know that your claim is far from being denied, it's still waiting to be
approved even," at first my heart jumped before I realized.
"Wait.. you mean the claim, from
today?" I ask, confirming the idiocy of trying to comfort me with the cold
hard fact that pushed me into the warm comforting arms of the idea of unlife.
"Yes, the one from today," the cop
replied. "It might not be a lot of money, but you should look at it like a
happy accident."
I have to facepalm, but I don't. "The thing
that upset me was that as soon as I get SSI, I won't get food stamps, because
it is a California
law... and the person helping me with rent will stop that aid, so together my
total amount for food and rent will be a fraction of what it is now.... But I
have program info to help now so I'll be okay somehow." I lie through my
teeth at the end... yet the cold realization dawns on the cop. The person at
that office duped him. The girl in the grass who is afraid of her landlords,
SSI is going to possibly make it so she can't get food to eat, it might mean
death from another mean that isn't suicide, which is why suicide is so
tantalizing.
"Well, you seem to be pretty stable. Um, if
we took you anywhere it'd be Hillmont, but..." the cop trailed off.
"That'd be worse, thanks for
understanding," I finish for him.
"So you won't hurt yourself?" he
clarifies.
"No, not on purpose." I answer,
"I do hurt my back all the time just trying to walk around though, but
it's all accidentally." to which I get the sad smile I was trying to get,
while I chuckle, adjusting my pose to ease my back pain.
"Well if you need anything call us."
"Will do, thank you~!" and with that
the cops leave.
--
6.20
6.20
Oh before they left, they did ask me what I was doing when
they arrived, and I explained that I was literally in the middle of blogging,
and they asked what about, and what I generally blog about. I told them that I
blog about being disabled, and I was writing out my feelings about the idiot at
the office I had dealt with.
What I failed to get into real details thus far was what
Dustin from the office said to me that crawled under my skin.
The whole reason I had agreed to make a phone appointment
with this office to discuss SSI or SSDI again, was because, it was mentioned
that I might actually be able to get an amount that would be survivable on. When
Dustin spoke with me, though, this became very apparent, not to be so. Dustin
was very spoken that I was too old to have any sort of disability insurance.
“You are too old to have any disability insurance,” Dustin
told me, as if I was some sort of idiot. His tone of voice was annoyed, like
everyone should already know the information he divulged. “You never worked
long enough to pay into it. You chose
to stop working too early.”
“I’m sorry, I chose?”
I repeated to him, a bit stunned. Was he referring the date of the last day of
work?! The day that my best friend had to help carry me out of the store
because I couldn’t walk unaided?!!
“You also didn’t choose
to work full time.” He continued. “Because
of your age, you have to have worked full time for five years… and you chose not to.” Dustin said this like a basic statement of facts.
Twisting my horrible accident and torturous turn of my life and suffering into
some sort of sweet fun flirtatious early life experimentation! Every time I
heard him say “choose” or “chose” I felt like a knife was digging deeper into
that injury already in the base of my spine.
“I never chose to not work full time,” I corrected him, my
tone as polite as I could manage. “I had to work part time due to my physical
limitations, as noted by doctors.” I
explained clearly.
“Well, because you chose not to work for so long, and not to
pay,” he continued to repeat as if he hadn’t heard me, nor read my case file
that I have 5 herniated discs!! My spine doesn’t work!!!! What the fuck is
wrong with this man?! “You’ll only be qualified for like SSI.”
Which would mean, basically no money, and under 300 a month.
Food stamps would be cut off. The person aiding my rent would stop, also. And I
would lose my housing, and my food in one swift active swing. I declared I
wanted nothing of it, I wanted to give it all up, and he began to call me
greedy that of course I was not entitled to a lot of money like ads on tv
suggested… and that was never what I wanted. I want money to survive by. Pay
rent, purchase food, medication.
This asshole is telling me that I have chosen to
voluntarily, able-bodily-not-worked for most of my adult life, decided all of a
sudden I am now disabled and want a lot of money and am now complaining that I
can’t get a lot, and supposedly I guess all those injuries and issues pre 2014
do not exist, but he can begin to get me 200 dollars a month starting 2015, and
that WILL be enough to live by, even in southern California. BECAUSE DUSTIN
says so… Even if there are no places that cheap, nor places where I can find
enough food for free even if I can find safe housing.
Thank you Dustin, even if I go to the social security office
myself, you’ve made me look like an idiot.
Tuesday, June 16, 2015
We Know You Are...
So a while ago I made friends with an awesome girl, and we've clicked very well. She has been gracious enough and even happy to help me out, by driving me to the pharmacy, to medical appointments and other things. The time spent we may be trying to figure out how to get there and laughing our asses off in the car as we talk about things, but still, I greatly appreciate it. One thing that we see a lot of though, are homeless, or supposedly homeless people, with signs asking for money, help, or literally "anything" that would help them.
For those not privy to some of the issues facing homelessness in the county of Ventura, just north of Los Angeles county, there are many more people spread out across the county instead of concentrated in places such as the famous Skid Row in downtown Los Angeles. Some of the people are actually not even homeless, many have homes, even own properties, and come and beg for money as a profession in affluent areas of the county. The reason why people are spread across the county and when you hand money to someone you have no idea if it is a con person, someone who needs food, or will buy liquor or drugs is because Ventura has barely any programs in place to aid homeless people, unlike Los Angeles county.
One thing that many might not know about me, is that I was legally homeless for a period, about a year ago. I was going to be on the streets. I didn't live in L.A. county, I lived 10min away from it. The thing separating me from being able to get a bed? The season that I became homeless and the fact that I was mostly wheelchair bound instead of able-bodied. If I had been in L.A. county, I would have been able to have found help. If I wouldn't have been physically limited, the reason I am out of work, I would have found help. If it had been colder outside, I might have found help.
When I explained to my friend my experiences in detail, about how I was set to sleep in a park for the first time. My preparedness with a knife in hand, and how much gratitude I feel, and just how much I truly owe to the family who is currently helping me out right now, she was very taken aback. I was nearly crying myself. If I didn't have Gigi helping me out of altruistic feelings, I might have died on the streets from exposure, sickness, or infection from a wound or other complication from my condition. When you cannot feel your legs well, you don't always notice injuries.
Once again I am dealing with a lawyer about SSI, or hopefully SSDI, but this time it is more from their office feeling sorry for my situation than they see me as a hopeful source of money, so I hope that I can perhaps begin to stand better on my own, so to speak... But, my friend even she needs help, still, because the cost of living here is too much to handle on her own at the moment.
I don't really have family as which to speak of. They are all dead, or act as if they are to me. So sometimes I admit I do feel jealousy towards my friends who have family, even the families who don't offer much aid, but still offer love.
But, on the streets when you drive by a person begging for money, I often feel a kinship because I've known often not having enough to eat. Not knowing if I would have a place to sleep. Being scared of my safety. I don't really have money to offer, though, so if I can I will offer food... And it is amusing and alarming just how high a percentage are offended by this. About half.
Now if you are unbathed, or appear to be, have a sign asking for money, or actually anything, and someone offers to buy you food, after saying, "I can't give you money, but I can give you food. Would you like something to eat?" Why would you be offended? Maybe about one fourth of the time they politely decline, but then that last quarter, I see the shine of hope in their eyes and they will gratefully usually take whatever food I have to offer. I have food stamps, or sometimes I may have left overs. Or before when I have had money on a debit card, I have willingly purchased food with it for these people, and then returned. I am not one to normally carry cash... But it makes me sad that they'd be so happy at the idea of food.
Yet I know so well, and understand, because I've been there. I have gone days without eating before. It is not the most fun thing to do in the world, when it isn't a willing act. I've done it out of crazy desperation to control weight, sure, but when my thyroid was in control, I never had to worry about eating too much, especially because for part of that time I was in a situation that food was very scarce. I might have a food portion appropriate for a small child, and then go the weekend without, having to wait until Monday for more, at school.
Why reminisce on such things? Well, homelessness is something I fear I may be facing again. I found out this morning, quite rudely I might add, that the $25,000 in plumbing work that was done, was pretty much done for no reason. At least that was what was told to me in other words. Part of my lease was that I needed to take baths... and baths are no longer allowed. Which leaves me unable to safely bathe.
I've done sponge bathing before, and it's no picnic, but it is safer than me taking a shower and falling, again.
The mother I live with, when I asked her if I could bathe again, not only said in a rude way, "Well... you can try... but I don't know..." As if everyone else in the house, it is okay if they bathe, but not me, she went on to say, "Baths are also a huge waste of water, too, so you shouldn't take them."
1. Electricity has been shut off at least 7 times since I moved in. That is a BASIC UTILITY!
2. I purposely don't go and take showers because I need LONG baths, because it takes me a while due to my injuries... Baths actually save me water.
3. I'd be willing to skip days to take a bath every few days, than a shower every day...
4. Also there was no mention of need to save water especially with how the lawn is watered all the time. If seems as if I'm the only one who cares about the environment, but I get chastised about water?!
5. Again baths were stipulated as a needed thing before I moved in. I unfortunately realize these people want me out... shit.
They want me to not bathe, they want me to be in pain, they don't want me sitting on the furniture as if I were some animal who might tear it up if I smell another creature, and they don't want me to prepare my food, nor eat my food anywhere but the kitchen any longer, despite the severe pain it might cause me.... which has lead me to unwillingly begin to fast.
I finally began to calm down about my dieting, because I noticed in the mirror that my stomach was smaller, and my collar bones were more prominent. Now I realize it might have to do with the fact that not only do I face the same difficulties with pain preparing food, I have extra pain with trying to consume the food in a chair. Wooden dining chairs force a posture that puts the most strain and stress on the lower back than standing or walking would cause. I will choose hunger more than that.
I've been accused of causing roaches to infest the kitchen, which I find disgusting, but I know why it's been caused. Something has begun that I didn't used to see, but I've seen at another place I lived. More and more, and for longer periods of time, food is being left out on the stove for days at a time. It is sickening enough, but then it is also reheated and consumed. Then I am blamed. As if my bookshelf against the wall of the kitchen, piled boxes, and bags and blankets would more entice roaches to come inside, ignore my room, and run into the kitchen. I still have yet to see more than an occasional spider in my bedroom.
Spiders are not cool..... ugh... yeah I am sorry I got bit by one once, got a terrible abscess, and so now unless it is something I know to be non-poisonous I will kill indiscriminately all spiders.
Sometimes I wonder if these people have somehow spoken to my father.
Tuesday, June 9, 2015
Biting My Tongue
Words have been bursting from me, but I have been trying to keep them all inside, desperately hoping that no one I know will judge me further than they have. I already have a low enough opinion of myself that having others just convince me that I am worth even less is driving me to a brink that is very hard for me to turn from.
I've been struggling with food, first of all. Part of it stems all the way back to when I lived with my father and step-mother and I was constantly berated for being lazy and eating too much. Is it an eating disorder if it is "technically" starvation because the amount of calories is so low, but the person is still overweight?
Probably 95% of people who read the above question will think, "Oh that's bullshit! That's impossible!" But, actually it is... if you have hypothyroidism... an underactive thyroid gland. Which was what was wrong with me when I was a pre-teen. I was under eating, and exercising for hours a day, but I couldn't lose weight, I only seemed to gain more. It was only at a doctor's visit that my father was commenting about how I was so fat and if there was advice for better exercises or diets that my step mother, yes the one who hated me most, actually interrupted him and pointed out I was very active and didn't eat much.
A blood test later and I was put on a very high dose of levothyroxine, the synthetic supplement for what your thyroid is supposed to secrete. I began to lose weight, I suddenly resumed growing in height, and I wasn't so depressed and tired and cold all the time, either. It was like a miracle had come to me. But unfortunately due to lazy medical care when I was 18 I put on 60 lbs in a year because I was taken off the medication though I still needed it, about the same dose I am currently on actually... and I have yet to lose the weight. I only recently got back onto the medication.
Now if anyone thinks it is like a placebo affect, you can talk to envious friends that I've been losing weight by not changing my diet what so ever. (Really, I am totally serious, I lost about 30 lbs without doing anything, and I was kind of like, "Haha, you lost weight from eating less, I lost it from just getting my hormones fixed!") Also you can't fake blood tests.
But, even with that, I'm still fat. Because I'm not like a model, like the one I live with who is my age. I never see her eat a normal adult sized meal, ever. That is if I actually even see her eat. Her father blatantly pointed out that it is my own fault that I am fat because I don't exercise enough, or didn't before my accident, and I could do more, now, too. Hormone problems are BS... even though he is very obese, has type 2 diabetes, and sleep apnea.
Still, it got to me. I've been counting calories to the point that now I am eating under 1000 a day. Averaging between 500-800 a day. When I started I was eating under 500. Maybe 150-400 at most. But I came to some sense. I am still extremely frustrated because nothing is happening. 1000 is below that starvation threshold! Why is nothing happening? I am exercising, too. 1200 is the least recommended. I mean, no one really cares enough to say anything to stop me, so it doesn't matter at all. If anything I could probably find ProAna's who might encourage me to dip back to below 500.
There was a guy I met, too. Someone I had known for years, who had seen pictures of me, and I had lost 30 lbs, and he thought I was too fat. It's really pushed me to try to lose weight. But because of my thyroid is it near impossible to do so, at least it has been ever since I was taken off my medicine when I turned 18. I am back on it, but the dose is so low I barely register the affects, other doctors who are not my primaries suggest a higher dose. I still suffer most of the classic symptoms associated with low thyroid hormone. I mean I am not gaining weight, but I feel tired and cold all the time, and that is super frustrating to deal with.
So where I live, I suppose it sounds weird when I say I live with a model and her dad. I live with a family. I rent a room. And when I first moved in things were nice, but everything has really gone to hell. The father lost his job, and got a new one, but it pays less, and today I heard that it is temporary. The mother lost her job, too. Over the weekend there was a $2500 plumbing bill that was wracked up, but the real problem was the main line draining out and it would be $25,000 to fix... But what was done should help for a month or two. But today everything went to hell.
It is kind of the family's own fault I have to say. We're supposed to be conserving water, we're in a severe drought, and this family just wastes water as if it means nothing. Karma's a bitch. The father usually water's the lawn every day. It doesn't even need watering every day, any idiot should know that, but yet he does it, despite the crisis we face, too! So, he used to throw an orange down the garbage disposal in the kitchen every month or so, and the main drain pipe got clogged. But this family does like tiny loads of laundry, tiny loads of dishes, super super super long showers, excessive watering, and the things that they have asked me NOT to do, I can only assume that they have at one time once done and it astounds me.
I've been being treated in a very unkind and different manner for a while now... very similarly to how I was treated by my father after he married my step-mother. It is mostly the mother, but the father has done it, too. Like the comment about my weight being too high, despite his own being out of control, I mean my BMI is overweight, his is obese, there are way more than just one example.
They claim that they are saying it to "all the girls", meaning myself and the other two daughters living here in their twenties, too. But, I sometimes doubt they've been told some of the things I have been told. About the plumbing I was told not to flush sanitary napkins or wipes of any kind, even if they said that they were flush-able, or large wads of tissue, and I immediately replied, "Of course, I generally try to treat private home toilets as if they could have a septic tank, just in case, you never know." But the father continued on, as if I had probably flushed several pads, tampons, and god-knows-what-else down the toilet before.
The mother also approached me about the new armchair in the living room that it was for the father only, like his personal chair, and for him to sit in, like only him. I was cool with that. I'm not cool that I have seen at some point every other person in the house and at least three other people who don't live here sit in the chair at some point with the mother or father present while they were in the chair and it was okay. So apparently it was meant, I cannot sit in the chair. That is totally fine, too, but I wish she hadn't been an evasive bitch about it. If they want to treat me like a dog that they want to stay off the furniture they should just say so.
At least my step mother had the balls to tell me that I was worth less than the dirt the graced the bottom of her shoes. The older daughter, whether or not she has an eating disorder, I truly don't know, she might eat while she's out, she actually doesn't seem to be home a lot, so I can't speculate what her secret is... but it really is just that, a secret. Yet the younger daughter is a conceited lying skank.
Even though according to her step father I am very fat, therefor you know, unattractive, the younger daughter is super jealous of me. It has something to do with when she invites people over she often makes them wait hours while she gets ready to leave. I am also not exaggerating, she makes them wait from 2-3 hours sometimes. I have had my best friend complain when I made him wait 3 minutes. This is another thing that I have incurred the wrath of the mother from, that I am kind to the younger daughter's guests. We really need to get a peep hole so I know who not to answer the door to.
I'm pretty sure that the rent I am paying might be somewhat vital to the family at this juncture, but at the way I am being treated less and less like a person and more like some sort of beast or animal, I am desiring to just leave. I would feel terrible if it had negative consequences for them, but wouldn't it perhaps be just because they brought it upon themselves?
I am biting my tongue so hard at this point that I am choking on my blood. At some point I might drown on my own blood or bleed to death...
I've been struggling with food, first of all. Part of it stems all the way back to when I lived with my father and step-mother and I was constantly berated for being lazy and eating too much. Is it an eating disorder if it is "technically" starvation because the amount of calories is so low, but the person is still overweight?
Probably 95% of people who read the above question will think, "Oh that's bullshit! That's impossible!" But, actually it is... if you have hypothyroidism... an underactive thyroid gland. Which was what was wrong with me when I was a pre-teen. I was under eating, and exercising for hours a day, but I couldn't lose weight, I only seemed to gain more. It was only at a doctor's visit that my father was commenting about how I was so fat and if there was advice for better exercises or diets that my step mother, yes the one who hated me most, actually interrupted him and pointed out I was very active and didn't eat much.
A blood test later and I was put on a very high dose of levothyroxine, the synthetic supplement for what your thyroid is supposed to secrete. I began to lose weight, I suddenly resumed growing in height, and I wasn't so depressed and tired and cold all the time, either. It was like a miracle had come to me. But unfortunately due to lazy medical care when I was 18 I put on 60 lbs in a year because I was taken off the medication though I still needed it, about the same dose I am currently on actually... and I have yet to lose the weight. I only recently got back onto the medication.
Now if anyone thinks it is like a placebo affect, you can talk to envious friends that I've been losing weight by not changing my diet what so ever. (Really, I am totally serious, I lost about 30 lbs without doing anything, and I was kind of like, "Haha, you lost weight from eating less, I lost it from just getting my hormones fixed!") Also you can't fake blood tests.
But, even with that, I'm still fat. Because I'm not like a model, like the one I live with who is my age. I never see her eat a normal adult sized meal, ever. That is if I actually even see her eat. Her father blatantly pointed out that it is my own fault that I am fat because I don't exercise enough, or didn't before my accident, and I could do more, now, too. Hormone problems are BS... even though he is very obese, has type 2 diabetes, and sleep apnea.
Still, it got to me. I've been counting calories to the point that now I am eating under 1000 a day. Averaging between 500-800 a day. When I started I was eating under 500. Maybe 150-400 at most. But I came to some sense. I am still extremely frustrated because nothing is happening. 1000 is below that starvation threshold! Why is nothing happening? I am exercising, too. 1200 is the least recommended. I mean, no one really cares enough to say anything to stop me, so it doesn't matter at all. If anything I could probably find ProAna's who might encourage me to dip back to below 500.
There was a guy I met, too. Someone I had known for years, who had seen pictures of me, and I had lost 30 lbs, and he thought I was too fat. It's really pushed me to try to lose weight. But because of my thyroid is it near impossible to do so, at least it has been ever since I was taken off my medicine when I turned 18. I am back on it, but the dose is so low I barely register the affects, other doctors who are not my primaries suggest a higher dose. I still suffer most of the classic symptoms associated with low thyroid hormone. I mean I am not gaining weight, but I feel tired and cold all the time, and that is super frustrating to deal with.
So where I live, I suppose it sounds weird when I say I live with a model and her dad. I live with a family. I rent a room. And when I first moved in things were nice, but everything has really gone to hell. The father lost his job, and got a new one, but it pays less, and today I heard that it is temporary. The mother lost her job, too. Over the weekend there was a $2500 plumbing bill that was wracked up, but the real problem was the main line draining out and it would be $25,000 to fix... But what was done should help for a month or two. But today everything went to hell.
It is kind of the family's own fault I have to say. We're supposed to be conserving water, we're in a severe drought, and this family just wastes water as if it means nothing. Karma's a bitch. The father usually water's the lawn every day. It doesn't even need watering every day, any idiot should know that, but yet he does it, despite the crisis we face, too! So, he used to throw an orange down the garbage disposal in the kitchen every month or so, and the main drain pipe got clogged. But this family does like tiny loads of laundry, tiny loads of dishes, super super super long showers, excessive watering, and the things that they have asked me NOT to do, I can only assume that they have at one time once done and it astounds me.
I've been being treated in a very unkind and different manner for a while now... very similarly to how I was treated by my father after he married my step-mother. It is mostly the mother, but the father has done it, too. Like the comment about my weight being too high, despite his own being out of control, I mean my BMI is overweight, his is obese, there are way more than just one example.
They claim that they are saying it to "all the girls", meaning myself and the other two daughters living here in their twenties, too. But, I sometimes doubt they've been told some of the things I have been told. About the plumbing I was told not to flush sanitary napkins or wipes of any kind, even if they said that they were flush-able, or large wads of tissue, and I immediately replied, "Of course, I generally try to treat private home toilets as if they could have a septic tank, just in case, you never know." But the father continued on, as if I had probably flushed several pads, tampons, and god-knows-what-else down the toilet before.
The mother also approached me about the new armchair in the living room that it was for the father only, like his personal chair, and for him to sit in, like only him. I was cool with that. I'm not cool that I have seen at some point every other person in the house and at least three other people who don't live here sit in the chair at some point with the mother or father present while they were in the chair and it was okay. So apparently it was meant, I cannot sit in the chair. That is totally fine, too, but I wish she hadn't been an evasive bitch about it. If they want to treat me like a dog that they want to stay off the furniture they should just say so.
At least my step mother had the balls to tell me that I was worth less than the dirt the graced the bottom of her shoes. The older daughter, whether or not she has an eating disorder, I truly don't know, she might eat while she's out, she actually doesn't seem to be home a lot, so I can't speculate what her secret is... but it really is just that, a secret. Yet the younger daughter is a conceited lying skank.
Even though according to her step father I am very fat, therefor you know, unattractive, the younger daughter is super jealous of me. It has something to do with when she invites people over she often makes them wait hours while she gets ready to leave. I am also not exaggerating, she makes them wait from 2-3 hours sometimes. I have had my best friend complain when I made him wait 3 minutes. This is another thing that I have incurred the wrath of the mother from, that I am kind to the younger daughter's guests. We really need to get a peep hole so I know who not to answer the door to.
I'm pretty sure that the rent I am paying might be somewhat vital to the family at this juncture, but at the way I am being treated less and less like a person and more like some sort of beast or animal, I am desiring to just leave. I would feel terrible if it had negative consequences for them, but wouldn't it perhaps be just because they brought it upon themselves?
I am biting my tongue so hard at this point that I am choking on my blood. At some point I might drown on my own blood or bleed to death...
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