I rent a room with a family currently, for about a year now. What really crawls under my skin is that I have severe back issues in the form of five disc herniations. I began writing this after the internet had been down for about 14-15 hours, and the mother told me to wait for the father to come home... Why? Because I will hurt my back... Yet they gladly want me to ignore doctor's orders about lifting over 5 lbs to take like kitchen trash out. So when I don't take that out, they get upset at me. I would gladly remove it, if I could. Their five year old can literally lift more weight than I can, which makes me feel like an idiot.
So just to be clear, and because I actually have had physical therapy exercises where I kneel down, I asked my therapist about kneeling down to reset the damn router for the internet. She told me that it was not harmful what so ever. She pretty much told me, if it doesn't hurt, go for it.
The mother is just a huge %*#& for no good reason a lot of the time, and I am left completely clueless. She reminds me of my step-mother. Her youngest daughter tries to show me affection, it pisses her off. I go to cook food and eat it in the kitchen, it pisses her off. So next time I eat my food in my room, that pisses her off. I bathe, that pisses her off. My back hurts, that pisses her off.
So the middle daughter, like mother like daughter, she has moods where she has hated my guts and then tolerated me. I am unsure how much this is being monitored. For a while I knew that the severely creepy brother of the father, who was old enough to be my dad, was cyber-stalking me... He was also peeking in my window, too. But the middle daughter, she got into some trouble and had her door removed.
My father threatened me many times about removing my door when I live with him, but he never actually did it... so I was offended when, let's say, on Dannie's behalf, her step-dad actually went thru with it! But as her boyfriend would wait for her to and would or would not be in the house, he began to become a friend of sorts, which lead to some disclosure. Many of her friends have lightly befriended me, and I have heard wild stories spun by Dannie about me, supposedly from my mouth. It really digs at me, especially because it is public and online, that there are outlandish stories being told by Dannie about me lying and faking things.
While doing poorly in high school, and goofing around since then, apparently Dannie got a degree in neurology, psychiatry, and psychology, at least, to be able to make the claims that she says about me.
"Mandi fakes seizures, real seizures people foam at the mouth. I know cause I've seen it in movies and stuff." So Dannie has said. Well my main neurologist, and a second one I saw while hospitalized disagree. When I first described my seizures Dr. Abbi finished what I was describing, for me... I was stunned, she got me! She understood!! Apparently mine are uncommon, but still common enough. I have epileptic and non-epileptic seizures. They are super painful to go through so they are no fun at all... I also feel super embarrassed afterwards....... so I don't like having them. With my current medicine regimen I think I have solved it!
"Mandi tries to steal my boyfriends." Well... I have heard this one before. Dannie makes her men and friends wait up to 3 or more hours to finish getting ready to leave to where they are going... meanwhile as a member of the household, I feel obligated to politely speak to them until Dannie takes them, cause I usually have answered the door, and she doesn't say a word to them....... So because I am kind, friendly, and don't make people wait for hours to pick me up, I am more of a people person.
"Mandi tries to seduce my male friends." Um... all of directly above, and apparently when I first moved in there was an incident that I got out of the shower and didn't know there were people over and I was in a towel and opened the bathroom door to a buncha people.... which I was so humiliated from. I have large breasts, shirts often look sexy on me without me trying... I don't need to seduce.
But there is more... I'd heard this in the past and was hearing it again, but a lot more. Making me out as a villain makes her look like a victim which makes her more attractive because a guy would want to protect her. If it comes up, I don't really deny being survivor of sexual abuse and rape. I don't see myself as a victim, it happened, I have gotten past that, but my willingness in dating and life started rather late because I was victimized and abused... for real, unlike some people. But because Dannie says such wild things about me, when people meet me they are like surprised I am not a crazy person.
Then one day Dannie's boyfriend talked to me because he was upset, so I humored him. We talked and I offered him resources I had received from a social worker, cause we are both kinda poor, lol. But later I found out, when he said, that he had to lie about talking to me and I immediately was like, "Yeah if you have to lie to Dannie about talking to me about getting resource help, I shouldn't be here, and you both need to work on your trust issues." Because he had said things to me that granted reasons for him to be untrustworthy. To be honest, he is a kind guy, but she is nice, too, and pretty, and sweet... And the way he treats her sometimes, I think she could do better. I get annoyed with Dannie, but it is almost like we're fighting siblings at this point in time.... except she is way kinder than my real sister.
So after I told off her bf that I wouldn't talk to him again, even about additional resources again, unless he got an OK from Dannie, he backed off. Ugh, she asked him why he'd been texting me as a set-up for him to fall into, and he did... she caught him. The idea that I would like him makes me cringe. He pretends to be nerdier than he is. Dannie and I know WAY more about comics than he does. He thought Rocket Raccoon was created JUST for Guardians of the Galaxy!! Seriously !!!! Also he is not intelligent enough... I made that mistake once before, and I realize I need a more intelligent guy. But to top it off, when I was offering resources he was totally not that interested in a roof over his head... he wanted me to do ALL the work, which pissed me the #*%& off.
So yesterday I had a rescheduled appointment with my back surgeon's office. It was supposed to be last week, but... ah well. Turns out... turns out... my blood pressure is very low, and a surprising amount of adults steal their crayons.
They used to have a body chart where you would draw a pattern to match how you felt where, now they use crayons, which people now break or steal, which I find highly amusing, but I have to admit, it is much easier than the old method because the pains overlap. By the time we finally got to the damned office... (we were parked across the street and I was pushed in my wheelchair over... I was in SO much pain omfg!!!!)
Without realizing it, I've been overdosing, ever-so-slightly, on my blood pressure medication... meaning that when I was not in pain, or in mild pain, I've been weak and light headed and I didn't know the reason... but now I do. Another thing that people think I fake. My weakness and diziness... but sometimes it is so bad I've fallen over, but I don't have a way to check my blood pressure at home, so I don't realize right away if it's been lower than normal, like it has been lately.
Sometimes in waiting rooms, especially at the E.R. my best friend has told me to, "tone it down" oh and in public... like cry not to loud, stop rubbing my leg so much, stop pulling my hair so hard, stop clawing my arms or face so hard........ but the pain is so bad tone is something I really don't give a shit about. I don't care if a nurse thinks I am faking if pulling my hair distracts me from thinking my leg could just necrotize and fall off any moment. ((Become dead tissue like what frostbite does, from the inside out and fall off.))
Why do I have to change MY behavior because there are bad fakers out there?! When it feels like there is a vice on your leg or spine and every moment it is getting a little tighter, and any second now, it is going to break bone, split tissue, everything will spill out open to the air.... I cry.... It is @*%&ing hard to make me cry from pain anymore.
When they gave me a caudal epidural, up through the tail bone, I felt like I was dying for days. But now it has gotten so bad I feel that pain from other things now. I have fell off a swing as a kid, flown twenty feet and landed on my neck and head, I broke my collarbone, completely like -_ break yeah ouch, that was nothing, but my pain that is constant is like that collarbone pain... I can't believe I thought that was bad, lol.
So because of how I look, my medical history, and how I behave, it determines how I am treated. I look too put together, I am too young to have such back injuries, and I know too much about pharmacology and medicine. Basically my brains, looks, and injury #*$% me over. I also handle my pain well, and because my dose of blood pressure medication is high, is disguises my pain, too. Then, because so many kids, and adults, abuse pain meds today, I look suspicious just begging for a way to be able to go home and hobble from my bed to kitchen and back. Often a Toradol shot makes me happy! (it is an NSAID, so it is super similar to Advil/ibuprofen, naproxen, etc.)
Someone will come in and see my list of medication and say, "Wow, you're on some powerful medications..." or they will ask what I am taking and once I tell them, and also I explain I haven't taken anything yet today, or like I took a single one in the last 24 hours, they say, "Well that is some strong stuff, and you're still in pain?" Despite if I claim I took one like 2 hours ago, or if I said I didn't take one, they will assume I took like 5. Even if I tell them I took a pill 3 days ago and ran out due to being unable to see my doctor....
"That stuff if usually given to people with cancer," The doctor stares at me, trying to intimidate me. Every time.....
"I am aware... I have a nast allergy to morphine, should be in my chart, which is why I am on the lowest dose of hydromorphone. Oxycodone doesn't help me much, it just makes me high, which I don't like," I explain, EVERY TIME... And the doctor always looks at skeptically. One of these days I should just let them inject morphine into me and swell up and scream in agony till my throat swells and be like, 'See? Morphine SULFATE allergy... lol."
"How much do you take in a day?" the doctor or nurse will ask me.
"I can take like up to 2 at the most, maybe 2 and 1/2, but usually I take none. I go days without it." I explain. I know what the doctor is going to hear. They have selective hearing.
"Okay, so 2.5 a day." The doctor replies and I wanna punch them in their balls.
"That's not what I said," I hiss annoyed, but I have been labeled a junkie now, nothing I say matters.
The last time that I was hospitalized I kept crying because I was in so much pain... According to the staff they were "Giving the medicine you take at home" which meant they were offering oral norco, and no hydromorphone/Dilaudid... A lot of norco leads to getting high and no real pain relief if I'm hurting super bad. So they just kept overdosing past what I was supposed to take in a day. I would even not ask for it, and it would be in with other pills, and I wouldn't spot it and realize after the fact I had taken it.
Finally they shoved it in my face and kept telling me to take it, and so to prevent myself being strapped down, I just took the damned pills... So I learned I had to cry quietly or else. When I was discharged I was treated like a major junkie though. Yeah, the staff forced me to take way more narcotics than I wanted, and then calls me a junkie. I was content to just cry in pain and try a heat pack, but the nurses weren't. Dr. Herman, my back surgeon, had said something about fixing my pain the night before I left, so I wanted to ask into it before I left and one of the nurses was super pissed that I was staying behind. Finally she said to me, "Do you not have all you pills at home?" no... I have pills...
"Do you need pain pills then?!" NO, I don't need pain meds I----
"Okay what pain pills do you want?" O : I was speechless at this point. "No I just wanted to know if Dr. Herman had scheduled an appointment or left a note, that's all!!!" She was offering essentially a blank rx..... which is highly illegal.
When I was brought into the hospital it was because I couldn't care for myself. I was struggling to walk with a walker, let alone prepare food, incontinence, severe pain, and weakness and so much more. Much of that is degrading and humiliating, who would fake that for something so low as a norco high, when you can score that on the street easily? Mostly the incontinence... Depends are expensive, same with protective bedding pads and rash creams. I also have issues with public restrooms when it come to urinating ugh....
As for the seizures, it isn't just my roommate Dannie who thinks I fake, ignorant medical personnel sometimes don't know better. I legally am not supposed to be driving until I can prove I have them controlled. They are super painful and embarrassing as hell. Who would want to fake that, for those costs?!
But I haven't even had an aura (the sensation you have before a seizure, for some people) for a while, but the pain is wearing me down. I went to that appointment yesterday and it got me a recommendation, but pain management doctors were the ones who have made me feel worse in the past. The irony of their name is not lost on me.
So because I am stuck at home so much, doing exercises that leave me in pain, hurt, and hopefully stronger, I blog. I had to block this guy Carlos from my blog because he's become so obsessive over me, and he's intruded upon my life so much, I've tried to avoid blogging about him at all, for fear of him finding out and freaking out and stalking me/obsessing over me more.
I blocked Carlos's Google+ from my blogger, so that means that he must have gone and either signed out to view my profile, made a new account, or done something. He is extremely un-savvy with computers (he doesn't even have one). A few weeks back I went to EQLA which was a convention for My Little Pony: Friendship Is Magic and it was supposed to be awesome, instead it was terrible, and I have had to keep it to myself until now.
Carlos.
Apparently Allen my bestie warned him about me and hotels and how it could be a huge PTSD trigger, and I didn't know that Carlos was warned. If anything it seemed like maybe someone gave him a pep-talk of yes, bother and ignore the girl's pleas to stop until the girl screams. It's like guys who think it's not rape unless the girl puts up a super feverish fight with like a lot of violence, but if you know you are going to lose, it's less painful to just submit and get it over with.
So after he kept wanting hugs, touching my shoulders and arms and hands constantly in an intimate way, like a lover would do, I began freaking out, before we even left for the Con we were going to. I don't mind a guy touching me in a flirty way, but touching me in a way that is perverted and lusty bothers me severely, because it implies sex super heavily. Carlos is an extremely sexually minded person, too, to the point I asked him not to follow me on Twitter because I don't want people to see someone like him following me on Twitter... he follows too much adult entertainment. That is alright and his life, but when he lustily stares at me, and touches me, it is super inappropriate, especially in public and in places where I cannot get away because I am restrained, like a car with a seat belt. It makes me feel dirty and causes a lot of bad PTSD memories to surface.
I will admit I offered to go on a couple dates with him, but that was a very long time ago. I tried to politely explain to him why I didn't want him as my boyfriend, but ever since then, it is as if he has tried to win, purchase, forced, and seduce my affection. A friend of mine cleverly said "girls don't like it when you try really hard," which I object to. A guy trying hard is not an issue, but someone who is not sincere in feelings and remains so, they've lost. I've already dated too many selfish guys who don't have respect for me, my body, my space, and my feelings.
If Carlos reads this I know it will probably crush him, but the messed up thing is, I blocked him from reading this blog, so he had to gone out of his way to read it... At the hotel at the convention he constantly followed me. Every time I leave my house, he actually seems to find out, and it is bordering on stalking behavior, especially because he wants to come along! I was hoping I could remain friends with him, but a disturbing text he sent me a couple days ago shows me that he has grandiose feeling and memories that at one point we were in love, when I've never been in love with him... I've only felt bad for him, as a human.
Allen and I have tried to explain what respect means to Carlos many times, but he never understood... so he cannot understand why I will sever our friendship because he is borderline stalking me. He has become less respectful. He always blames other people or things instead of taking responsibility.
I really wanted to remain friends, so as I write this I am crying, cause I feel like a terrible person... but I've already had two boyfriends who had to know where I was every minute of the day... we're just friends and he is doing that- so... I can't keep talking to him it seems.
Then I hear a knock on my door and I am given notice to vacate. Going to be homeless again. Of course Carlos and my father will want to "help" in their severely messed up way that offers no aid, and is a huge joke and makes me just angry. Why do people offer "help" that is of no actual help?
